Hi all, sorry this is coming so late. Not a whole lot of difference today than yesterday but a couple improvements.
This morning she had another protein drink for breakfast, she didn’t have complaints about specific pain but just feels horrible in general. They gave her a unit of blood to boost her energy, etc. They had her stand once in the AM. For lunch she ate some grilled chicken and fresh fruit, the most she’s had so far… thing still don’t taste/smell good to her, the smell specifically bothered her. A cardiologist came in and checked her vitals and thought she might not need the permanent pacemaker, so that would be good news but we don’t know for sure.
Physical Therapy came in and worked with her some, we’re not sure exactly what they did.
At dinner she had fresh fruit and oatmeal and she seemed to be tracking conversations much better for the 1/2 hour Ally & Todd could visit. Worked on her breathing and her leg movement.
Overall the day was better in terms of her eating more and tracking more but worse in terms of walking, transferring to the chair, etc.
Tomorrow all her doctors will be back from the weekend and Ally & Todd will talk to them about what could might be slowing her down. I spent too much time Googling (which can always be dangerous) but I did find a lot of mention of lupus flaring up after a major surgery. When she was first diagnosed with her lupus she was so weak and I wonder if it is flaring up now and keeping her from progressing. Todd & Ally will be asking the Dr about that tomorrow hopefully. She remains in the ICU which is great as far as getting a lot of attention, etc but we’d love to have her further down the road of recovery in a regular room. We will have to be patient, this is going to take some time…