Dane was sawing logs when I arrived at the hospital a little after 7 this morning. He’d managed to move his back supports that keep him off his bedsore. I know he gets tired being moved every two hours, day and night, and never being able to lie flat on his back, or his position of choice, for a good night’s sleep. I wish it weren’t that way for him, but things won’t always be this way. They are taking very good care of him…wonderful care. You just can’t beat the Ellsworth Hospital for good medical care.
Brit and I took him via wheel chair and oxygen tank to the cafeteria for his noon meal. He is a challenge to feed and keep sitting upright. It takes two of us. The meal was excellent and he enjoyed it, but didn’t eat much. They had barbecue chicken breasts, steamed broccoli, au gratin potatoes, cabbage slaw and Boston cream pie. The cooks also made wonderful cinnamon rolls this morning. There is a lot of good food that comes out of their kitchen.
They had to do some maintenance work on Dane this afternoon so I decided to come home to avoid hearing the owwww’s. What they are doing hurts, and it hurts moms to hear those sounds from their kids, no matter how old they are. The laundry was piling up at home and I thought I’d try to catch one of the women’s basketball games today as a diversion (UW-Green Bay and Maryland). The Lady Wildcats were great last night and won again by adjusting their game without main star Megan Mahoney. They are more interesting to watch than most of the men’s teams, imo. They play again tomorrow night at 10:30, which will be a tad late for me.
I couldn’t find any Easter decorations at ALCO for Dane’s room although they had a couple of truck loads of chocolate eggs. I’ll try Robson’s tomorrow. I think Jenny, Serena and some aides have an idea for something for his room. They all enjoy it as it is so colorful. They are all so nice to Dane and take very good care of him.
LATER: I just was sprung! Mackenzie and Ruby came to help Dane with his dinner and spend the evening visiting with him. He gave both big kisses on the cheek.
His room looks great. I found some decorative eggs to print off the net and place on his bed that he can see from a prone position. The activities director at the hospital put all kinds of interesting things on his bed so it looks Easter festive. Everyone loves how his room looks. They do such an all-around super job at the hospital to make patients comfortable and happy. I think Dane is convinced he is anywhere except in a hospital; something you do when you mentally retreat from where you are.
They had St. Patrick’s Day planned from morning until evening with various things to share: Irish jokes, the history of St. Pat’s Day, puzzles and other things pertaining to Ireland to occupy their patients, plus wonderful food, when appropriate, tinted in various shades of green. It was delightful.
They replaced Dane’s Foley today and he uttered hardly a sound. That was such a traumatic, painful ordeal in Wichita that I didn’t want to be around to see him have to go through that again. But it went slick as a whistle today with only one slight owww. Gary did a great job. Men need to take care of those things for other men. Jenny had good results with her efforts and he was resting quite nicely when I returned this afternoon. He was also far more alert than he was this morning. Joann ran some oxygen, CO2 blood tests and made some determinations, which she explained to me in detail, that will also be helpful to him. They are all so kind and considerate of him.
Well, before I left tonight, Dane kicked off his sheet and had his right leg and arm churning. I asked where he was going and he said, “to the bathroom”. I said, as I have a hundred time before, something like well, maybe, you can just stay in bed as you have a Foley. He knows a heck of a lot about medicine so I don’t try to push anything over on him. He said, “You know Mom, if I have to call the hospital administrator I will. I’m getting up!” So, I mentioned that I had seen Roger this morning. He asked how he was and forgot what he wanted to do. I wish he could get up out of bed, and I’m happy that he still thinks he can and wants to. The confusion will pass.
So, after a lovely chat with my friend Sandra in Chicago, I’m going to relax this evening. It’s so nice to have intergenerational friends, and I’m fortunate to have a bunch, such as Sandra. I’m old enough to be her grandmother (her parents are the ages of our children) yet we are very close friends, always will be. I always enjoy our visits. She has been a very supportive friend.
Mr. Gray Goose came to visit. What a pleasant surprise!
Mississippi State is giving Duke about all they can handle. I’m sorry not to see KU playing.
The family is intact. We’ve struggled but kept the bonds tight. We’ll make it through all this, but it is difficult for each us, individually and collectively. Each of us can only go day by day. Dane’s illness has changed our lives individually and perceptively. We know Dane will come back to us in time. It won’t be soon, but we one day will have back our son, father and brother, who will be the best he can be, different from before, but the best he can be. That is all that we want. Being in Ellsworth, with all the help we are receiving from the medical community and friends, helps enormously toward that goal.
Worried is a word that doesn’t exit in many languages. I’m trying to forget what it means.
I see our good and loyal friends, Pete and Betty, were up and and reading my blog at 5:05 this morning!
We’re all on a positive track. More tomorrow.